Some Daily Ramblin'

Ever since the car accident, I feel like I’m on a lifelong quest to put myself back together again. I definitely did not want to embark on this journey, but that's life for you- throwing hardships at you when you least expect it and feel like you can't handle anymore suffering. If my life was a pile of leaves, it was like someone took a leaf blower to it as I just watch all the leaves fall pack in a random chaotic order. My mom used to refer to me trying to remember what I was saying as "catching my bunnies". So often in the beginning years after TBI, I couldn't remember what I was talking about while in the middle of talking and my mom would refer to it as me trying to "catch those bunnies." I remember so many times I would get SO mad at myself if I forgot what I was saying or what the point of my tangent was or if I couldn't find the word I was looking for to describe something. I wouldn't just get pissed and then move on either. I would get furiously mad at myself and perseverate on it for hours. It would ruin my mood for a long time. I used to give my inner critic so much power it's actually mind-blowing looking back on it and how far I've managed to come in the past few years (but it took working on self acceptance and giving myself grace daily to get there). I would criticize myself repeatedly everyday far worse than anyone else could. That was my go-to mental strategy for self talk. Looking back at that version of myself, I just feel so bad for freshly brain damaged survival mode Meg. She was doing her damnedest while also being criticized harsher than ever in a time where she could do less than ever.

It is SO hard to teach yourself how to catch self criticism & negative self talk. I just took a minute to take some deep breaths and focus on my breathing and it started right up again. I can't let my guard down for a second even when I’m tired or else the most commonly used neural-pathways for my ANTS (Automatic Negative Thoughts) will light up and I’ll be right back in that place again. The place I worked my ass off getting out of. That’s what motivates me. I don’t ever want to be there again and that is what fuels me to keep working everyday on things like self talk and self care. This is also why I’m such a big advocate of helmets also. I can’t risk another brain injury and I want to do whatever I can to help those I know be less at risk too. Several doctors and neuroscientists have already explained to me that I’m at risk for early onset Dementia. They reassured me that as long as I don’t get anymore TBIs, I should be okay though. 

Off-topic, but there is a song lyric by Rilo Kiley that just popped into my head as I was writing and I'm going to put it out there in case someone else could benefit from it the way I have for so long:

"All of your failures are training grounds." 

No matter how full our plate is and how defeated we feel, remembering that all things happen for a reason can be hugely helpful. Sometimes that reason doesn't become clear to us for years. Sometimes that reason is simply to make us grow into a better, more resilient version of ourselves. 

Here are some notes from when I attended the Acquired Brain Injury Program at Coastline Community College about cognitive distortions which are types of ANTS. The notes get a bit cut off because they were hand written on my iPad, but they go on to talk about how to break cognitive distortions. The first step is examining the evidence & knowing your deficits. Being able to recognize them in yourself is half the battle. These cognitive distortions often stem from FEAR (False Evidence Appearing Real). When we take the time to examine that evidence, we can then recognize the distortion which allows us to find new ways to compensate for them.

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Chronological list of my Traumatic Brain Injuries

Due to the discomfort of re-living these experiences, I found it easier to write out my injuries as opposed to repeating them verbally to those who are curious. Here are the Traumatic Brain Injuries (TBI) that play a large role in the impairments I still struggle with today:

  1. May 2006 - Accidentally punched in the back of the head and knocked unconscious resulting in 23 stitches needed on my forehead and TBI.

  2. July 2009 - (see previous post) Was hit by an oncoming driver going 60mph who ran a red light resulting in TBI and 5 years of Post-Traumatic Stress Disorder (PTSD).

  3. December 2011 (pictured below)- Fall. Impairments included loss of the ability to speak in full sentences, impaired judgement as well as exacerbated mental health problems and short term memory loss. This was the straw that broke the camels back. After this last major head trauma, I was diagnosed with Post-Concussive Syndrome.

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The thing about concussions and TBIs is that they add up. Each one causing brain damage in different areas of the brain with lasting effects. 

A new "normal" had been created overnight. Things I used to be able to do effortlessly had now become impossible and I couldn't understand why for first couple years. After repeated TBI, I had issues such as: short term memory loss, constant headaches, fatigue, confusion, impaired judgment, personality changes, trouble focusing, insomnia, sensitivity to noise and light, delayed processing, delayed reaction time, extreme anxiety, severe depression, and suicidal thoughts/suicidal ideation. People who did know me during this time described me as "a zombie" whose eyes were lifeless and actions often time made little sense (2012-2013 in particular).

The frustration I felt with myself for not being able to do basic everyday things anymore took its toll on my self confidence. I had to learn what capabilities I still had, and which I'd have to re-learn like the concept of time management, organization, sequencing & decision-making. I was misunderstood by literally everyone in my life especially because from the outside, I still looked the same. There was no physical disability that reminded people I was struggling with cognitive disabilities.

Years later with rehabilitation and the Twitch & Destiny community as a support system, I have been able to start my journey towards getting off disability and returning back to the life goals I was working towards before I was injured.